For the past few weeks I’ve been getting in results from my rheumatology visit and today I got some that made me angerfied.
First let me tell you what all types of medical whozits i’ve had over the past few years
2012: Back Spasm #1- normal pain meds and began the epic journey of chronic back pain. Carolina Spine had no clue so they referred me to physical therapy which didn’t work, I went to a Duke spinal specialist and he came up with nothing exciting after an MRI. I started to see a Chiropractor and miraculously could at least walk and function without super drugs
2013: Continued to go to Chiropractor all the freakin time while praying my back would feel better eventually. This is also when I started to go to the podiatrist and over the course of a little over a year had 3 “surgeries” on my toesies.
2014: February I had PRK on my eyeballs; which was somewhat voluntary but still resulted in many many ophthalmology visits. Next up comes the endocrinologist, multiple visits including primary care and referral to duke endocrinology where I had to have a 24hr urine collection at home, a series of blood tests done which ended with the water deprivation test (no food/water for the entire test and I had to pee in a cup every hour and get blood drawn every other hour until released…mine lasted from 7:30am to 5:30pm) From that work I had another MRI, which showed I apparently have a cyst surrounding my pituitary so I tried the hormone medicine they gave me which made me sick. Since then I drink about 5L of water a day and pee just as much with basically no nutrients being absorbed. Around this same time I was diagnosed with Reynaud’s, which cuts of capillary blood flow to my extremities and my body goes into hypothermia pretty much.
2015: This year I was sent to the Rheumatologist to see if I have an autoimmune disorder and a direct quote from the labs I got back –> “Not sure what it means at this point or how it fits in” so I apparently have to go back in a few months and repeat whatever labs she feels like, and I got a voicemail today that I didn’t get to listen to until 3:30 that says they have confidential and important lab results for me but shut their phone lines off at 3 on Fridays..I’m also in the process of scheduling the yearly MRI check-up for my cyst. Bonus point; my back feels like I belong in the bell tower of Notre Dame
So in summary I have an incredibly simple medical chart.